Birth Date - November 30, 2001
Main Diagnosis - Duplication chromosome 14q32.33, Non-alcoholic
THEME: Princess Crowns
Biography
Vanessa was small at birth but progressed normally until her 2 year check up when the pediatrician noticed her liver felt large. Blood work showed her liver was enlarged and her enzymes were triple the normal limits. A liver biopsy was performed and showed she had NASH which one day will lead to a transplant. She under went many regressions in development and now is 10 with the mental capacity of a 4 year old.
Vanessa soon began having meltdowns, and could not learn what other children her age could. The doctor began doing genetic tests on her and she was tested for various diseases until 2009 when a CGH ARRAY showed she had duplication chromosome 14q32,33.
Vanessa and her brother Jacob are the only known case of this disease in the world. It affects the main organs and causes mental retardation.
Vanessa had patent Forman ovale heart defect, poly cycstic ovarian syndrome, glaucoma, enlarged optic nerves, asthma, a weakened immune system, she is a border line diabetic due to being insulin resistant, and has ADHD, agorophobic, anxiety, developmental delays, and is a pica which means she eats unedible things.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!