Welcome Friends!
Mason M.
South Carolina
Birth Date - January 14, 2011

Main Diagnosis - type one diabetes

THEME:  Endangered Younguns - green, orange and blue

"Squares donated from OTB"
Biography

Mason was born 1/14/11 and everything was perfect. When he had his
first solid food at 5 months old he got really sick. His pediatrician assured my
he simply wasn't ready for food. Everything we would try again he got sick, he
would have projectile vomiting. He was 9 months old when we finally were
referred to an allergist. After several different tests, we were told that he
had severe food allergiesad FPIES. They referred us to a pediatric GI and Mason
had an endoscopy and we were told he very well may also have EE.
Mason was still mainly breastfed at this point and barely eating anything. He
has seen many therapists who try to help him get over his food aversion. He
stayed the same weight for 7 months. On October 15 he got sick. He was throwing
upononstop, even water. We went to the children's ER because he was showing
signs of dehydration and had lost two pounds. Once we got some test results back
we were told that he has DKA ( Diabetic ketoacidosis). He was in PICU for
several days hooked up to so much. They said his body had to detox. Once he was
more stable we were moved onto the floor and had to start figuring out how to
get his sugars to stay in his safe zone. He wasn't eating enough so he wasn't
getting the carbs or calories he needed. They decided to place an NG tube and
try formula. He did very well with it but the doctor said it was too temporary
for his situation. He had surgery and had a G tube peg placed. After three weeks
in the hospital we finally were able to come home.
Mason enjoys being out of the hospital and we are glad to have our other son
home also. But it is very scary for us. Mason is getting 45ml of elemental
hypoallergenic formula every hour on continuous feeds for 20 hours. We also have
to check his blood sugar every four hours. If it is too low we have to give him
small amounts of juice and hope he keeps it down. If it's too high we have to
give him insulin injections. He has one type of insulin we give every morning
regardless of his sugar. His g tube spot has what they called granulation tissue
and is not yet improving with the steroid cream. He goes back to ped surgeon in
Dec and will be getting another surgery to place a different type of tubing. We
still have a lot to learn and adjust to. Mason has been so strong and amazing
throughout all if this! He is definitely a miracle!
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Quilt Backing
"THANK YOU"
Mason just received his quilt and he absolutely loves it! He keeps pointing at all the pictures and he is just so excited! I cannot thank you all enough!
Lots of love!!
-Mason and family