Liam W.
Indiana
Birth Date -  June 23, 2011

Main Diagnosis -  Neurofibromatosis, Optic Pathway brain tumors

THEME: Blue for Boys
Biography

Liam was born on June 23 2011 at 33 weeks. He was sent to the NICU where he spent 7 weeks on a ventilator, vepotherm, cpap and oxygen. Liam was sent home on oxygen and a apnea monitor. Due to Liam needed oxygen past 3 months old we were told he had Chronic Lung Disease Once Liam was home he started running a fever and was readmitted to the hospital. He was then diagnosed with aspiration and sent back home after a week. Two weeks later Liam started jerking and crying so he was rushed back to the hospital where he was diagnosed with seizures.
At 6 months old Liam was sent to a neurology doctor that told us Liam had Neurofifbromatosis and needed a MRI for baseline purposes. Once the MRI came back the results showed some shadowed areas but at that time they felt it was nothing to worry about. Liam was started with home physical and occupational therapies. Other then a few sleep studies Liam seemed to be doing ok. At a year and a half Liam needed surgery for tubes ,tonsils and adenoids and had his larynx lasered.
At two years old Liam needed his larynx lasered again and another MRI was done. A few days later the phone rang and Liams Neurology was telling us he needed to see oncology because the gray areas that were not concerning before was now concerning due to growth as well as new tumors showing in his optic pathways on both sides. When we went to see the oncology doctors we were informed that Liam would need Chemo but wanted to wait until his next MRI to see if any growth would be noted, Liams official diagnoses are Seizures, Chronic Lung Disease, Neurofibromatosi, Asthma, Reflux, Brain and Optic Pathway Glioma tumors.
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