Welcome Friends!
Isabel H.
New York
Birth Date - December 14, 2010
Main Diagnosis - Trisomy 13
THEME: Teddybears
Biography
Isabel is the youngest of six children. She was a normal pregnancy and a repeat c-section. Everything seemed fine until Isabel was about 5 five days old. She had a severe apnea episode and had to be resuscitated and transported to the local children’s hospital. Isabel was released two days later and I was told it would not happen again. Well, it did happen again and continued to happen for weeks. We finally were able to get her on an apnea monitor. Two weeks later Isabel started to have uncontrollable seizures and was admitted to the PICU for two weeks. During that time genetic testing was done but the geneticist did not think Isabel had any chromosome issues. Three days after being discharged from the seizure incident Isabel was re-admitted for respiratory distress and that day we got the genetic testing results. Our worlds were forever changed. Isabel has 20% trisomy cells. The other 80% are Iso uniparental Disomy 13 meaning they are two chromosomes from the sa> me parent. Apparently in utero Isabel’s body did what is called a TRISOMY CELL RESCUE and corrected 80% of her Trisomy cells. Isabel had a G-tube inserted on February 18, 2011 and was trached on March 24, 2011. After a few bouts of pneumonia we started to put her on a ventilator at night in June of 2011. Isabel is 17 months old today , she says “mama” and “dada”, she rolls over, and she is 23 lbs and 31 inches long. She loves her brothers and sisters and they are amazing with her. I thought it would be so hard for them to understand that she is disabled, but they do understand and they accept her and love her dearly. Isabel is currently 2 years old. She is no longer ventilated at night but is still trached and feed via g-tube. Isabel is still working on sitting up and walking but we are confident she will do it someday.
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Squares donated by "Operation Teddy Bear"
