Birth Date - March 3, 1998
Main Diagnosis - Eosinophilic Esophagitis
Quilt Deadline: 1/15/2013
Biography
Ce'de was diagnosed with Eosinophilic
Esophagitis in January 2010. Prior to diagnosis she had suffered from birth
with chronic abdominal issues. She was born 9 weeks early so the medical team
thought her symptoms were all related to her premature birth. For 11 years, she
dealt with numerous unexplained hospitalizations, uncontrollable vomiting and
upset stomach, fluctuations in weight, joint and muscle pain, flu like symptoms,
chronic ear infections resulting in multiple sets of tubes and adenoid removal,
low immune responses and much more. After her diagnosis, she eliminated dairy
from her diet with little relief. She then went on a Top 8 Free elimination
diet. In September of 2011, it was decided that she needed to be on an
elemental diet due to the severity of her abdominal pain. Ce'de was unable to
drink the amount of formula that she needed on a daily basis to maintain
nutrition so she had an NG Tube placed. On November 5, 2011
, she had GTube surgically placed. As of now, she totally relies on a special
amino acid based formula for her nutrition. She only has one safe food and that
is rice.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
