Welcome Friends!
Caleb S.
Ohio
Birth Date -  April 23, 2003

Main Diagnosis - Intractable Epilepsy

THEME: Britty Kitty
Biography

Caleb was born a seemingly healthy baby. Around 4 months old we noticed he wouldn't use his left hand. At his well visit the family doctor told us he was showing early hand preference. By his 1 year well visit, he was unable to sit on his own, he couldn't crawl, or bear weight on his legs. He was referred to a Neurologist for an MRI which showed a stroke had damaged roughly 50% of his right hemisphere. He was diagnosed with left hemiplegic cerebral palsy.
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> Around the age of 6 he presented with Myoclonic seizures. At the age of 8 he was diagnosed with epilepsy.Since then he has developed multiple seizure types. He is on 4 different medications, and his last test showed he was still seizing multiple times a day, each lasting 7-9 minutes.In February 2013 he was officially diagnosed with Intractable Epilepsy (medicine resistant). He is now facing the only thing the doctors think can stop his seizures. A Hemisoherotomy, also known as a functional hemispherectomy. The surgeon will do multiple tests to ensure that he is a perfect candidate, and most likely he will have the surgery sometime this spring/summer. A hemispherotomy is where the surgeon will take part or all of his temporal lobe, and then he will disconnect the right side of his brain from his left. It is a radical procedure, but has been proven effective in treating his specific seizure types.
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