Welcome Friends!
Caelon A.
North Carolina
Birth Date - May 15, 2008

Main Diagnosis - Primary CNS Vasculitus

THEME: Cartoons
Biography

Caelon was born a heathy baby boy on may 15 2008, at 20 months after
waking we noticed his right side arm and leg were both weak so we took him to
the hospital where we confirmed he had his first stroke. He bounced back from
that very well but subsequently had another and received a slew of test to
include a temporal lobe biopsy a skin biopsy and a brain biopsy. All test
returned negative and we were sent home. Over the past 3 years e has suffered
six strokes usually affecting his right side, this last one leaving him blind in
his left eye. It is unknown of that vision will return. The doctors are
convinced that all signs point to the problem being Primary CNS Vasculitus and
he has started undergoing chemotherapy over the course of the next 2 years to
rid his body of inflammation and hopefully ridding him of further strokes.
He currently has a Facebook "like" page at www. Facebook.com/CaringForCaelon
He is a bright loving happy four year old boy who tackles life and just enjoys
being a kid. He is bright, funny and independent. Nothing can slow him down
because quite simply he doesn't know the meaning of the word quit. Many people
speak of seeing true miracles in there life, he happens to be my little miracle
:)

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Once there click on the link "database" on the right to view the children and their patterns.  Once you find a pattern  that you want to stitch and have confirmed it is not already being stitched  you may return to the sign up form, fill it in and submit it.  If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!)  Thanks!



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