Welcome Friends!
Avery K.
Illinois
Birth Date - November 21, 2005
Main Diagnosis - X-LA Aggamglobulinenemia/Lennox Gastout Syndrome
THEME: race cars (esp NACSAR) His favorite drivers are Dale Jr, Jimmy Johnson, and Kyle Bush.
Biography
Avery is 7 years old and has been living with a rare immunodificecny
disorder that he will have his hole life. He gets daily doses of antibotics
twice a day for the rest of his life. and he also get weekly immunoglobulin
treatments at home every week on tues. He has had many trips to st jude in
Memphis and to sj jude in Peoria. We are luck we are now able to do them at
home. However, he also was recently diagnosed with Lennox Gastout Syndrome a
very rare form of epilepsy and hard to treat as its a very aggressive disorder
with many types of seizures. We make frequent trips to Peoria hospital ever 3
weeks and he has had 4 EEGs so far and goes back for his 5th on march 18th. He
has spent anywhere from 1 day to 3 days hooked up to the EEG machine at the
hospital. We are also getting labs done about ever 2-3 weeks for his epilepsy
meds and every 3 weeks for his blood levels in counts for his immune disorder.
We do a lot of traveling and staying places. But he's a fighter.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
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