Welcome Friends!
Avery B.
Colorado
Birth Date - June 10, 1997
Main Diagnosis - Russell silver syndrome, eosinophilia, stroke 2001, severe asthma
THEME: Religious pictures with Bible verses for a 15 yr old.
Biography
Avery was born three weeks early and only weighed 3 lbs 10 ozs.
Doctors believed that he would catch up on his growth after he was born, but
that never happened. At 6 weeks Avery had meningitis, noone thought he would
make it through, this was the first time Avery showed us his strong will to
survive. He proved everyone wrong and fought through. At three months he had
his first bout with breathing difficulties. This would be the beginning of his
lung problems. Avery was diagnosed with Russell silver syndrome (a form of
proportionate dwarfism) at almost two years old.
At 3 1/2 Avery weighed only 18 pounds. He struggled with eating and keeping his
foods down. Doctors felt putting a gtube into his stomach would help him put on
weight, but instead we found Avery had motility issues. He couldn't take even
an ounce of food at times and was put on TPN. While on TPN Avery went into
ketoacidosis and had a stroke. We were told Avery might not make it and if he
did, he may never walk or talk again, but his fighting spirit was still there.
He proved everyone wrong and after 6 months was doing both. However, Avery
breathing continued to deteriorate.
Avery has struggled with his growth, breathing, and motility issues. All work
against eachother to complicate things. Avery has spent almost three months
this year so far in hospitals. Recently they have diagnosed him with
eosinophilia. His body is making too many white blood cells which are now
attacking different parts of his body. In an attempt to keep the eosinophils in
check, Avery has become steroid dependent, causing a whole other set of
problems. He now has osteoporosis. Osteoporosis, keeps Avery from doing the
things he loves. He nolonger can ice-skate and most sports are out due to his
breathing problems.
With everything going on, Avery still keeps his faith and has a great attitude.
He never gives up and never complains. His doctors are impressed with the fact
he always takes things as they come and still has a great attitude. Even in
times he is miserable, you won't hear a complaint. He takes it in stride. His
doctors have told us if our breathing was as poor as his is, we would be laying
on the floor begging for help, but not Avery. He is quiet and tries to keep up.
At nights he says his prayers which are full of requests for everyone else. You
only know he is struggling because he will end his prayer with, "please help me
feel better".
Avery wants no ones pity. He wants to be like everyone else. He started high
school this year and is the varsity volleyball manager. He is loving robotics,
and though very shy, he is working on making friends. Avery not only doesn't
complain, he doesn't give up. His fighting spirit is inspiring to all who know
him. He is special, he is our hero.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
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